Canadians with Down Syndrome Are Living Longer, But Still Face Premature Health Risks
Thanks to advancements in care, Canadians with Down syndrome are living longer than ever before. But despite this progress, many still face serious health risks and a significantly shorter life expectancy than the general population.
A recent study found that as of 2020, there were 22,367 people living with Down syndrome in Canada, and 30% were age 40 or older. While this reflects tremendous strides in healthcare, life expectancy for people with Down syndrome remains around 60 years—compared to 82 years for the average Canadian.
At Orleans Family Health Clinic (OFHC), we believe it’s time to address the critical gaps in adult care for people with intellectual and developmental disabilities (IDD), including Down syndrome.
The Alzheimer’s Connection
One of the most significant health threats for adults with Down syndrome is early-onset Alzheimer’s disease. According to Dr. Brian Skotko, a leading expert in the field, Alzheimer’s-related complications are now the leading cause of death for this population.
Why? People with Down syndrome carry an extra copy of chromosome 21—the same chromosome that carries the gene responsible for producing amyloid plaques, which are strongly linked to Alzheimer’s.
As life expectancy improves, preventive care and early screening for dementia symptoms become essential—not just in hospitals, but also in community-based clinics like OFHC.
Preventive Care and the Role of Primary Care
Historically, Down syndrome was viewed as a pediatric condition, but that mindset no longer reflects reality. Many individuals with Down syndrome now live into adulthood and require ongoing primary care support to thrive.
Unfortunately, a system-wide lag in adult-focused supports means many adults with Down syndrome miss out on:
- Alzheimer’s screenings
- Cardiovascular health checks
- Thyroid function testing
- Sleep apnea diagnosis and treatment
- Mental health evaluation
At OFHC, we aim to prevent “diagnostic overshadowing”—a dangerous practice where symptoms (e.g., fatigue, irritability, or memory loss) are wrongly attributed to Down syndrome itself instead of being fully investigated.
Clinicians are encouraged to use tools like the Canadian Down Syndrome “Health Watch” checklist, which is posted online by the College of Family Physicians of Canada. This tool helps ensure patients receive holistic, individualized care.
Family & Community Support Matters
Medical care is just one part of a longer, healthier life. Adults with Down syndrome benefit greatly from:
- Strong social networks
- Engagement in day programs and recreational activities
- Routine physical activity
- Cognitive stimulation (e.g., puzzles, word searches, music)
- Balanced nutrition, including vitamin B12 and sleep disorder management
Family caregivers play a vital role in identifying early changes in health and ensuring timely care. At OFHC, we collaborate with caregivers and social services to provide integrated, coordinated care.
The Way Forward
This landmark study reminds us that while we’ve made enormous strides since the 1950s—when most children with Down syndrome didn’t survive past age 5—we still have much more work to do.
Our mission at OFHC is to help people with Down syndrome live not just longer—but better.
If your loved one has Down syndrome, speak with an OFHC provider today about personalized adult care, preventive screenings, and wellness strategies.
Together, we can help close the life expectancy gap—and support full, enriching lives for all.
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Disclaimer: The medical information on this site is provided as an information resource only and is not to be used or relied on for any diagnostic or treatment purposes. This information does not substitute for professional diagnosis and treatment. Please do not initiate, modify, or discontinue any treatment, medication, or supplement solely based on this information. Always seek the advice of your healthcare provider first. Full Disclaimer.
